ESPaCC’s greatest achievements 2017/18 were the increase in both our membership, up to 542 members, and the numbers of parents and carers who were interested in becoming more involved, potentially as parent carer reps.
ESPaCC also developed partnerships with public health, and community-based services such as primary care. Both partnerships resulted in participation workshops, and the development of resources for parents and carers, and with an ever-increasing reliance on primary care services, this is an area we hope to develop further.
ESPaCC were also successful in their application for a seat on the Collaborative ESBT Stakeholder Group. This group comprises senior commissioners and stakeholders from both Health and Adult Social Care, and is responsible for feeding into, and monitoring strategy and developments across East Sussex.
ESPaCC Chair was invited to attend the LA SEND Senior Leadership Team meeting on a regular basis; recognition of ESPaCC’s crucial contribution to developing SEND strategy & policy.
By the end of March 2018, we had 12 trained Parent Reps actively engaged, along with the Management Committee, in areas such as Local Offer and Community Paediatrics, and working closely with organisations such as Amaze and Care for the Carers.
During the year we held 11 events for Parents and Carers in response to the wishes and needs of East Sussex families. 119 parents and carers attended and as result, we gained 39 new members from these events.
Wills and Trusts
The Mental Capacity Act
Education, Health, and Care Plans
Primary Health Care
We also ran 2 successful sessions for our Parent Reps
1 session for would be new Parent Reps
1 session of further training for current Parent Reps
Monthly Enews’ were sent out to 840 families, schools, support groups, councillors and professionals.
Of the 10 enews that were received by parents, just under 50% were opened each time - the industry standard for non profit organisations is stated as 20.9% so we are doing very well.
We represented families across East Sussex in many different areas, including:
SEND governance working group
East Sussex Better Together
Wheelchair Contract monitoring
Bladder and Bowel Service
High Needs Workstreams
We carried out 4 surveys on our website regarding issues such as Short Breaks and the Bladder and Bowel Service and School place planning, on behalf of ESCC, to gather feedback on how the various services were working for families in East Sussex.
ESPaCC continued to receive enquiries via our website on matters such as school transport, EHC plans and therapy services. All enquiries were dealt with quickly and signposted to the correct department appropriately.
Members of the Management Committee and Parent Reps attended a total of 368 meetings through the year ranging from high level meetings such as Joint Commissioning, to High Needs Workstreams, various steering groups and meetings with Health colleagues and the Local Authority. On average, they attended 31 meetings a month between them.