Children's Bowel and Bladder Service ( March 2018)
We are hearing an increasing number of concerns from East Sussex families about the provision of continence products: What is your experience of the children's Bowel and Bladder Service? Have your child's products been reduced or stopped? Where you offered an assessment and if so, how did you feel about it? Maybe you were pleased about the service? Was your experience positive or negative? All stories will have names and identifying features edited out to maintain confidentiality. Let us know your story by 31st March
"David Cameron said that all children/young children should be assessed as individuals, and not one sizes fits all, after Mums net presented him with a petition."
Children's Continence Service - responses to questions asked on behalf of families (2015)
Feedback was collated by ESPaCC from approximately 100 families (55 children) that use the Children’s Continence Service, and passed to Healthwatch East Sussex for further investigation. Healthwatch East Sussex raised this feedback in May 2015 and received the following response... “Many apologies for the delay. As we discussed there is the ability for all individuals to be assessed as to their product need and this is taken into consideration when ordering. There is a ‘daily allowance’ but this is a guideline and so if required more can be ordered. The company can take the orders for extra pads directly but at this moment in time we cannot order more through them for the individuals and charge. I hope this helps but let me know if not. Director of Nursing, East Sussex Healthcare NHS Trust” Healthwatch offered this response to ESPaCC, but we did not feel that this answered the questions and concerns families had - so we asked for each question raised, to be answered individually. Please scroll below to read.
LETTER to Anne Singer, general manager children's and young people's clinical unit, and Pari Rueb, lead nurse children's bowel and bladder service (December 2013)
Latest Update (January 2014)
"As a lead for the children's continence service I am currently in the process of writing a letter to inform you that all children who receive continiung health care, will NOT be having their orders changed for continence pad provision.
We will however in line with NICE guidance be assessing all children who require products within the next six months to ensure that they are on the correct product.
Please also note to all parents, it is not best practice to offer continence products if an assessment has not been completed. Therefore anyone who refuses an assessment will have their orders put on hold".