Does your child or young person have complex disabilities, a life limiting or life threatening condition?
We were approached by two organisations requesting input from young people and their parent/carers to inform research they are undertaking. Attached are two papers providing more information but in summary, they are:
1. A short online survey for a project called ‘Precious Moments’ (Roald Dahl’s Marvellous Children’s Charity and Contact a Family) – asking you to share your experience of times when healthcare professionals have shared important news with you.
2. Surveys for children and young people and for parents/carers from Demos to determine the level of support available across the UK for children and young people with complex disabilities, life-limiting and life-threatening illnesses, and their families. The full report can be read here