Welcome to East Sussex Parent and Carers' Council
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      • Limiting the number of continence products
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Past Events

Past events

Plan or be planned for

February 10th & 11th.... two very successful days exploring how to create a plan for the future and make it happen, looking at the many options about housing, support, transport, further education options, financial security, meaningful opportunities for your son or daughter to do once they leave education, and how to create real lasting friendships and relationships for your child /young person.

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Legal Duties Event

We held a Legal Duties Event on the 13th February, which was very well attended.

Our speaker was Douglas Silas, a solicitor well known for his passion and expertise in the area of special educational needs, who has a national reputation for his considerable experience in this area.

Presentation
Website

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SEN Roadshows

In March we held four SEN Roadshows across East Sussex to give a very brief outline of the forthcoming changes, and to help us better understand the SEN Reforms priorities for Parents and Carers.

We hope to be able to hold another SEN Roadshow in the summer term, where we will cover topics in much more detail.
Keep an eye on our website.
Presentation


Local Offer Event

On 30th January we held an event to find out more about the Local Offer, Information, Advice and Support (IFF), Mediation, and Independent Supporters.


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Changes to School Transport Event

In September we hosted an event on behalf of East Sussex County Council.  They gave a presentation on the four proposal for changes to travel support for pre-school and post-16 students with Special Educational Needs and Disabilities (SEND) to a number of parents who attended.

Post 16 and pre-school transport is discretionary
Costs need to be cut, and there will be changes
There are four possible proposals, and any combination of these proposals will be considered

Parents views fed back to the consultation being carried out by East Sussex County Council, results to be heard soon.  To see a copy of the presentation and for more information about the consultation visit our Home to school transport webpage.

One Page Profiles - Planning for the future
In December Caroline Tomlinson showed 16 parents how to make real plans that will make a difference not only for today but also for their child's future.  These plans will give confidence for the future and ultimately peace of mind in knowing that with a plan our children will be planned for whatever happens in the future.  She showed the parents what should be included on those plans - what is important to and for children and what works for them.

Wills and Trusts - planning for the future

A successful morning's training was held on 29 June 2016 with Philip Warford of Renaissance Legal with regard to this subject.  He talked about why it is so important to write a will and how to go about setting up a trust for disabled children.  This session will be run again at some point in the future.  
This training ran for the second time in September 2017 and was again enjoyed by all who attended.
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SEN Support and EHC Plans with Amaze

The East Sussex Independent Support service is now offered by Amaze.
Amaze offered a chance to find out more about Education, Health and Care Plans (EHCPs)in these 3 well attended sessions around East Sussex. There was a presentation about the process of an EHCP, the timeline and how Amaze can help with the process.  There was plenty of time for questions, and an opportunity to talk to the Independent Supporters about the way their free service can help families with all aspects of EHCPs.  Three sessions were held in Newhaven, Hastings and Eastbourne throughout September 2016.  
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Decision Making, Mental Capacity and Powers of Attorney

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If you are a parent or carer of a child or young person who may not be able to make decisions about their welfare and finances now or in the future, you will need to consider the best ways to protect them as they move to adulthood.

Philip Warford, Lawyer and specialist in planning for the future of disabled & vulnerable people, talked through who can make decisions on behalf of another person, the key principles of the Mental Capacity Act 2005, Powers of Attorney and how the Court of Protection might help. This session along with the Wills and Trusts above will be run every six months.

Home to School Transport

Home to school transport is no longer guaranteed for post 16 pupils (as they leave Year 11). Budgets are tight, criteria tighter, and families are expected to make their own arrangements to get their child to school where possible, or to work with the Local Authority to encourage their child to travel independently where appropriate.

In March 2017 at Sussex Downs College we ran a session with the SEND Transport Project Manager and the Independent Travel Team Leader from East Sussex County Council. A number of parents who attended were able to learn about the recent changes to East Sussex’s SEND Transport policy, and understand how this would affect their families.  Visit our Home to School Transport page to see a number of questions and answers raised at that event.  To find out more about Independent Travel Training visit our webpage.
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Personal Budgets

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Following a survey ESPACC carried out last year on personal budgets, which showed us that families are asking for more information and clarification, we held a Personal Budgets event on 29 March 2017.

We found out more about personal budgets - what they are, how they work and eligibility?  How can a personal budget be used in a flexible way to improve a child's life experiences and help them meet their outcomes as well as supporting the whole family.

Andrew Baxter, Children's Lead, from In - Control, provided us with a wealth of knowledge around the topic of personal budgets at this event.  Visit our webpage to find out more about Personal Budgets.

Primary Care and Learning Disability Health Events

Do you have a young person with learning disabilities?
Do you know what help you are entitled to from your GP and 'what happens next' when that young person leaves education? 
Did you know:
To be on the GP’s learning disability register so that reasonable adjustments can be made when attending the surgery and so that they will be invited for an Annual Health Check.
Annual Health Checks and Health Action Plans – the background to them and the rationale for them
Medication reviews including the campaign called STOMP – Stop Over Medicating People with learning disabilities
We held two events presented by Erica Pope, Primary Care Learning Disability Health Liaison of the NHS Hastings and Rother CCG and Teresa Andrews from HARC who gave a presentation about benefits.  
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  • Home
    • Who and What is ESPaCC >
      • Partnership Board
      • Management Committee >
        • Parent and Carer Representatives >
          • ESPaCC Membership
      • Policies and Documents >
        • Annual Reports
      • AGM
    • What We Do >
      • Newsletters
      • Appreciation Awards >
        • Past Awards 2017_18
        • Past Awards 2015_16
        • Past Awards 2013_14
    • Calendar
  • Good News Stories
    • Coming Soon
    • Appreciation Awards
  • What's New(s)
    • This Month
    • 2018_19
    • 2017_18
  • Tell Us What You Think
    • Consultations and surveys
    • CQC/Ofsted Local Area Inspection
    • Ask us a Question
  • Where to get help
    • The Local Offer >
      • Local Offer survey
    • SENDIASS
    • Independent Support
    • Contact
    • Council for Disabled Children
  • Education
    • EHCPs >
      • Transition From Statements to EHCPs
      • Single Route of Redress - National Trial
      • If you can't agree
    • SEN Support
    • Independent Supporters
    • ISEND >
      • Local Prospectus for SEND
    • Home to School Transport >
      • Independent Travel Training (LIFT)
    • Home Education
    • Need More Help?
  • Health
    • Public Health
    • Wheelchair Services
    • Primary Health
    • CITS and CIES
    • Children's Continence Service >
      • Limiting the number of continence products
    • Continuing Care and Continuing Health Care (CHC)
    • Transition to Adult Services
    • Community Paediatricians
    • Designated Medical Officer
    • East Sussex Better Together (ESBT)
  • Social Care
    • Children's Services
    • Personal Budgets (PBs) >
      • Individual Personal Budgets >
        • What's News
      • Personal Assistants
      • Whole Family Personal Budgets
      • People Plus (A4E)
    • Carers with Military Connections
    • Short Breaks
    • Adult Social Care
    • Care for the Carers (CFTC)
    • The Law >
      • The Care Act
      • Carers Assessments
  • Preparing for Adulthood
    • Education
    • Health and Wellbeing >
      • Sexual Health
    • Employment and Training
    • Leisure Activities
    • Transport
    • Housing and Benefits
    • Planning for the future
  • Events
    • Current Events
    • Focus Groups
    • Past Events
  • Contact Us
    • Join Us
    • Ask us a Question
    • Jargon Buster
  • National Network of Parent Carer Forums
    • Who is the NNPCF?
    • NNPCF - State Of The Nation
    • NNPCF Statement April 2018
    • NNPCF AGM and National Conference 2017
    • NNPCF Consultations
  • Management Committee and Parent Reps
    • Rep Feedback Form
    • Rep Feedback and Minutes April 2019 -
    • Rep Feedback and Minutes April 2018 - March 2019
    • Rep Feedback and Minutes April 2017 - March 2018
    • Rep Feedback and Minutes April 2016 - March 2017
    • Rep Feedback and Minutes pre 2016